Key Words

Family–centered – Family-centered care is teamwork between patients, families, doctors, nurses, and other health care professionals for the planning, delivery, and evaluation of health. It assures the health and well-being of children and their families through a respectful partnership between the family and doctor. It honors the strengths, cultures, traditions and expertise that everyone brings to the relationship. Family-centered care is the standard of practice that results in high quality services.

Accessible – Accessible care means having a doctor whose office is available, in terms of not only location, but also meets or exceeds the requirements of disability access. The doctor’s office also accepts your insurance, and you have the ability to speak with your doctor when you need to. These are all important components to the structure of your medical home.

Continuous – Continuous care is a treatment model that informs the doctor of the entire child is other medical visits, procedures and prescriptions so they can provide the best care possible. Your child may need to see a variety of doctors to ensure all of his or her special needs are being monitored, cared for and addressed. Continuous care promotes keeping your primary doctor up to date and aware of other medical consults and procedures.

Comprehensive – Comprehensive care means management over all aspects of your child’s care. Ideally, your doctor (or their backup) would be available 24 hours a day, 7 days a week, and 365 days a year to give your child the care he or she needs.

Your doctor would be in charge of preventive care such as immunizations, growth and development assessments and other appropriate screenings as well as the monitoring of your child’s complex condition.  Often doctors advocate for your child. The doctor or his or her office is able to provide information about private and public resources, including supplemental funding resources, education programs, waivers, and other programs for children with special needs.

Coordinated – Coordinated care is a team process that involves family members, teachers, social service employees, and doctors. Coordinated care ensures access to appropriate community-based services and supports comprehensive, community-based services. When developing a plan of care for your child, you work with the doctor and assist in providing information.  You also ensure that the care plan is shared with all of your child’s doctors and that it is up to date.

Compassionate – Compassionate care is concern for the well-being of the child and family. It is expressed in verbal and nonverbal interactions. Efforts are made to understand the feelings and perspective of the child as well as the family.

Culturally Effective – Culturally effective care starts with communicating to your doctor that you have certain cultural beliefs or request you would like your doctor to observe or consider when treating your child.  When the doctor is aware of your requests, he or she will be able to make you and your family more comfortable with the care of your child.